The European Joint Programme on Rare Diseases: a €100 million partnership to boost research into rare diseases

Press Release
The European Commission officially announces the start of the EJP
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The European Joint Programme on Rare Diseases (EJP RD) has two major objectives:

(i) To improve the integration, the efficacy, the production and the social impact of research on RD through the development, demonstration and promotion of European/ world-wide sharing of research and clinical data, materials, processes, knowledge and know-how;

(ii) To implement and further develop an efficient model of financial support for all types of research on RD (fundamental, clinical, epidemiological, social, economic, health service) coupled with accelerated exploitation of research results for benefit of patients.

To this end, the EJP RD actions are organised within four main Pillars assisted by the central coordination:

  • (P1): Funding of research;
  • (P2): Coordinated access to data and services;
  • (P3): Capacity building;
  • (P4): Accelerated translation of research projects and improvement of the outcomes of clinical studies.

Among the activities planned under the P4, EATRIS will be responsible for assembling an Innovation Management Toolbox, assessing the translational potential of research projects and providing real-time mentoring. EATRIS contributes to other parts of the project related to education and the programme’s sustainability strategy.

Project Acronym EJP- RD
Funding Program H2020 (Health)
Budget €55,073,831
Coordinator INSERM (France)
Website http://www.ejprarediseases.org/
Start - End Year 2019 - 2023
Website by Lewis+Humphreys