European Joint Programme on Rare Diseases Innovation Management Toolbox launched

On 30 June, the European Joint Programme on Rare Diseases (EJP RD) launched the Innovation Management Toolbox (IMT). This new tool is a reference library of resources in rare disease translational medicine. It is free to use and has been designed to provide investigators with self-help resources specific to their needs. Each resource is curated to improve searchability and the database is actively maintained.

The objective of the toolbox

The EJP RD Innovation Management Toolbox empowers researchers to conduct rigorous translational research. It aims to help researchers independently navigate the complexities of translation and give a clear overview of the communities that are available to help them. The ultimate impact of these activities is to reduce uncertainty and inefficiency in the academic translational research process, resulting in faster development and more patient-centric research outcomes.

“We are very proud of the great effort EATRIS and all involved partners have put into creating the Innovation Management Toolbox (IMT). We believe that it’s a great asset for the rare disease community, especially for investigators navigating the challenging journey from research to clinic and back. The IMT will enable researchers to increase the impact and patient benefit of their translational research projects in rare diseases’,” says Anton Ussi, EATRIS Operations & Finance Director.

Using the toolboox

The toolbox is essentially an easy-to-use library following the idea of a search engine. Watch the tutorial video below.


The toolbox has been developed through funding from the EJP-RD project. The European Joint Programme on Rare Diseases is an initiative that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575.