EGAN, The Patients Network for Medical Research
EGAN, or The Patients Network for Medical Research and Health, is an alliance of both National Genetic Alliances and European disease specific patient organisations with a special interest in genetics, genomics and biotechnology. EGAN is working for a voice in research and health policy and seeks a world in which genetic and other serious diseases are understood, effectively treated, prevented and the people affected supported.
EGAN and EATRIS ERIC have signed a letter of intent to set up an EATRIS Patient Advice Committee (EATRIS-PAC), which will involve the participation of expert patients connected with European umbrella patient organisations, including EPF and EURORDIS, as well as European disease-specific patient organisations. The EATRIS-PAC will advise EATRIS upon request and/or on its own initiative. These advices may relate to:
- European programmes and calls, among others EU, IMI and others;
- availability of patient cohorts;
- new or ongoing research projects in which EATRIS institutes and KOL’s participate.
For further information about EGAN please visit their website: www.egan.eu.
There is an additional website organised by EGAN, www.biomedinvo4all.com, which is a site set up to empower patients and their organisations for their active role in the ‘Roadmap to treatment’: biomedical and health research and related policy issues.