A milestone moment in European Rare Disease R&D has been reached with the approval of the grant proposal for the European Joint Programme on Rare Diseases (EJP RD). This consists of eighty-five collaborating organisations collaborating under a budget of approximately ninety-six million EUR.
The goal of this is to develop a sustainable and coherent ecosystem allowing a virtuous circle between Rare Diseases care, research and medical innovation. The actions toward the goal of this joint project are organised within four major pillars. The Pillars cover funding of research, coordinated access to data and services, capacity building and accelerated translation of research projects and improving outcomes of clinical studies. EATRIS ERIC is the co-leader of Pillar 4, covering translational and clinical innovation.
“We are excited with this development and are looking forward to supporting the scientific community in translating great science into great medicines for the many unserved RD patients in Europe and globally” said Toni Andreu, MD PhD, Scientific Director of EATRIS.