| Date & Time | 16 May 2025 | 10.00-12.00 CEST |
|---|---|
| Address | Online |
This online discussion explores the evolving role of patient experts in the digital age. With a focus on the European Health Data Space (EHDS), the event will address how digital health data, artificial intelligence, and emerging regulatory frameworks are transforming the landscape of health research. Participants will reflect on the growing importance of patient engagement – not only as data providers, but as active contributors to research design, data governance, and innovation. Through expert insights, real-world examples, and open dialogue, the session aims to highlight new opportunities for collaboration between patients, researchers, and health institutions across Europe.
Agenda
10:00 – 10:05 Welcome by Eliis Keidong (EATRIS)
10:05 – 10:50 Keynote talk: The Role of the Health Data Access Body in the New EHDS Regulation. The Netherlands experience – Dr. Ildikó Vajda (Patientenfederatie Nederland)
10:50 – 11:00 Open Q&A
11:00 – 11:50 Roundtable – Patient Role(s) in the Digital Era – Moderated by Baiba Ziemele (patient advocate, Latvian Network of Patient Organizations), this session focuses on practical strategies for engaging patient experts in clinical research, with shared experiences and discussion on collaborative approaches.
Panellists: Executive Director of EUPATI – Maria Dutarte, the Head of Patient Engagement in Research at SJD Barcelona Children’s Hospital – Begonya Nafria Escalera, and the Head of the Stroke Research Group at Vall d’Hebron Research Institute and leader of the TRUSTroke project – Dr. Carlos Molina.
11:50 – 12:00 Open Q&A
REGISTER FOR THE EVENT HERE.
(link to join online will be sent to all registrants before the event)
For questions regarding the event, please contact Justine Krumina, RSU at justine.krumina@rsu.lv
The event is organised by EATRIS Latvian node coordinated by Riga Stradins University, and within the framework of the EATRIS-CONNECT project.
Watch the event recording here:
EATRIS-CONNECT will promote the cross-border alignment in the adoption and application of digital tools and help consolidate the European Research Infrastructure (RI) landscape by fostering interdisciplinary collaborations between cross-sector RIs and exploring how RIs can together unlock innovation in the digital domain with a particular focus on AI-enabled technologies. EATRIS-CONNECT will provide the pathway for the digital transformation of EATRIS. All 14 national EATRIS nodes form the central pillar of EATRIS-CONNECT, facilitating the alignment of strategic national priorities across the infrastructure and empowering EATRIS’ widening nodes to strengthen their digital competencies, ultimately ensuring the long-term sustainability of EATRIS.
