“It’s Time We Talk About Patient Engagement” Webinar

Date & Time 7 December 2023 at 12:30 CET
Location Virtual

This webinar will serve as an introduction to researchers who are new to patient engagement and curious to learn more about good practices. While academic researchers are gradually involving patients and citizens in their research, meaningful patient engagement practices are challenging to develop in academia for various reasons such as lack of human and financial resources, or limited awareness of the tools and services available to guide researchers in their patient engagement journey.

Two patient organisations European Patients’ Forum (EPF), European AIDS Treatment Group (EATG) and two large academic networks European Research Infrastructure for Translational Medicine (EATRIS) and EU-LIFE-Alliance of independent research institutes in the life sciences across Europe decided to join forces to inspire and encourage academics to get started in Patient Engagement. Join us for an hour of interesting roundtable discussion and a demonstration of the recently launched Patient Engagement Resource Centre (PERC) developed by the EATRIS-Plus project.

Agenda 

  • 12.30 Welcome by Marta Dias Agostinho, Executive Director, EU-LIFE Alliance 
  • 12:35 An introduction to the Patient Engagement Resource Centre, a new platform to help you get started with patient engagement, Eliis Keidong, Member Engagement Officer, EATRIS 
  • 12.45   Keynote Presentation from Sofie Bekaert, Manager Translational Programme, VIB (Belgium)  
  • 13.00 – 13.25 Panel discussion chaired by Valentina Stramiello, Director of Programmes, European Patients’ Forum  
  • 13:30 Closing by Marta Dias Agostinho, Executive Director, EU-LIFE Alliance 

Panellists:  

  • Sofie Bekaert, Manager Translational Programme, VIB, Belgium 
  • Zoe Gray, Deputy Director for Public Partnerships, National Institute for Health and Care Research, United Kingdom 
  • Elizabeth Vroom, Chair, The World Duchenne Organisation 
  • Dr. Emma Dorris, Programme Manager PPI Ignite Network,  University College Dublin, Ireland 

Rewatch the webinar below.