| Date & Time | 15-16 May 2024 |
|---|---|
| Location | Online & Brussels (Belgium) |
ECRD is the largest, patient-led, rare disease policy-shaping event in Europe.
Sessions
ECRD 2024 will comprehensively address the diverse unmet needs of individuals with rare diseases, to improve the health and wellbeing of the 30 million people living with a rare disease in Europe. Key sessions at ECRD 2024 will include:
- Revolutionising Funding Strategies for Breakthrough Therapies in Rarer Diseases
- No Health without Mental Health! Let’s Co-create a Mental Health and Wellbeing Toolkit
- The Path Forward for Equitable Diagnosis
- Achieving Full Reach: Overcoming the Last Challenges to Access Highly Specialised Care
- Innovative Therapies, Unequal Access: Bridging the Gap for Rare Disease Treatments
- National Plans: Exchanging Best Practices to Forge a Unified European Response to Rare Disease
Programme
ECRD 2024 will present a diverse and rich programme, tailored to address the full spectrum of challenges, opportunities and innovations in rare diseases. Keynote sessions will feature foremost experts in research, policy and patient advocacy, while interactive workshops will focus on dynamic dialogues and hands-on development of practical solutions.
Participants will explore the latest research, studies and initiatives via poster presentations, and network with a diverse group of peers, experts, and advocates. The hybrid format allows global online participation or in-person attendance in Brussels, ensuring an inclusive and accessible event for everyone. Moreover, ECRD 2024’s timing will be especially impactful, occurring just weeks before the EU elections, poised to significantly influence the future of rare disease policies at a pivotal moment in European politics.
All topic-related sessions at ECRD 2024 will be subtitled in 12 languages, making it our most accessible conference yet!
Registration is now open with a limited number of 300 places available to join in person and early-bird fees available until 2 February!
EATRIS is an Associate Partner for this event, actively contributing and supporting the success of the event through collaborative communication efforts.
